Not a normal post!

Have you ever visited a blog or followed it for so long that you felt like you almost knew that person?  Well, that is how I have been with the blog EBing a Mommy.  I think I found this blog soon after she started it and have been following it ever since.  It's about a two year old with a horrible skin disease called  Junctional Epidermolysis Bullosa. 

I have fallen in love with this sweet little boy and his mom.  After such a horrible struggle with this disease, he is finally at peace.  Saturday he returned home to Heaven.   I cannot stop thinking about his sweet mom.  I can't even imagine what she must be going through right now.   I'm sure she is so happy he is finally free from pain, but the loss must be unbearable.

Her blog taught me so much.  It made me hug my kids tighter and try and be kinder.  Sometimes parenting can be so hard, it's easy to become frustrated and loose our patience.   This sweet mom just longed for the little things that parents like me take for granted.  She would have done anything to see Tripp run or talk or be able to eat or see.  My heart just hurts so much for her right now.

I feel like I'm just babbling on, not sure what I'm trying to say.  If you get the chance go and visit her blog.  Say a little prayer that she will be comforted and at peace.  I'm posting a poem she wrote to her sweet son, it's a tear jerker, but so beautiful.

I'll need a Pinky-swear

As he lies in my lap

And together we sway

I rock him to sleep 

And meanwhile I pray:

"Dear God, I know you can see us

And you're watching from above

Filled with sadness for him, as we are,

And equally in love.

I've never once asked You "why?"

Nor questioned if You were near. 

But I do have one request tonight, 

I pray that you will hear. 

When it's time for You to call him home, 

And my hope turns into despair,

I will need more than a promise from You,

I'll need a pinky-swear...

That you will hold him close to Your chest,

And say "I love you" all day long.

That you will rock him 'til your knees get sore,

And sing his favorite songs.

Tell me that You'll keep him safe,

So I will not be distressed.

Tell me that he'll will get his wings

And tell me he'll be blessed.

Let me know he made it safely,

Without a single blister or bleed,

Let me know that you will do MY job,

To fulfill his every need.

I have to know that you will love him,

Just as much, or more, than I do.

And when he finally speaks a word,

That You'll record it so I can hear, too.

My buddy is going to need Your help,

With so much yet to learn.

Like using a spoon, writing his name,

And having to wait his turn. 

God, please be patient when he tries,

For he's such a sweet and loving boy.

Please give him every thing he wants,

But make sure he shares his toys.

These are things I'll miss out on,

Like no Mommy should have to do. 

So don't let one milestone go unnoticed,

Please, I'm begging You.

He likes Elmo's ducks, The Three little Pigs,

Shoo Fly and Counting to Four.

Big Green Tractor, Rise and Shine. 

And when they stop, he'll tell you "more."

He holds certain toys in certain hands, 

And says yes with a big smile.

Please spend some extra special time,

And talk with him awhile.  

It breaks my heart to have to think

That he won't graduate from school. 

Or go to prom, or have kids of his own,

Or even break a single rule.

Tell him for me- please don't forget,

That I wanted him to stay. 

That I tried and tried to ease his pain,

But it was only YOU who knew the way.

I know you have a choir of angels,

Who play music while they fly.

And if they need a drummer boy-

Well, my Tripp, he's their guy!

You've probably seen it for yourself,

That he's one brave kid, indeed.

But he'll be scared if You have to leave,

So stay with him, I plead. 

If he has to go to Heaven first,

I'll make one promise back to You- 

I'll miss him every second he's gone, 

And spend the rest of my life trying to get there, too.

I hope that's not too much to ask,

And I trust You'll do your best. 

To fill my spot, just temporary, 

And answer my requests.

Thank in advance, Dear God.

Because I know You're a busy man. 

I trust in You and in Your Will

And know You have a plan."

Words just simply can't express

To my only son who just turned two-

How very much my heart will ache

If that rocking chair is without you.

So dear sweet angel baby of mine, 

If we ever have to say goodbye...

I'll rock you in my heart forever, 

Until we meet again in the sky.